Join Ola Ojewumi, a patient and health advocate with Post-Transplant Lymphoproliferative Disorder (PTLD), who shares the difficulties she has faced as a Black disabled woman with chronic pain, including her experiences with racism and inequities in healthcare and how she has learned to advocate for herself and others.
Rye Brook, N.Y. (February 5, 2021) – The U.S. Food and Drug Administration (FDA) today announced approval of UKONIQ™ (umbralisib), a once-daily, oral medication for the treatment of marginal zone lymphoma (MZL) that has returned or worsened following prior treatment with an anti-CD20 antibody. MZL is a clinical heterogeneous, slow-growing non-hodgkin lymphoma composed of three subtypes: extranodal, nodal or splenic MZL. It is considered a slow growing disease with generally favorable outc...
The U.S. Food and Drug Administration (FDA) today announced its approval for a breakthrough treatment that will bring the promise of immunotherapy and new hope to thousands of patients diagnosed with mantle cell lymphoma (MCL) whose previous treatments fail to bring them lasting remissions. There are more than 70 subtypes of lymphoma, and MCL is a particularly aggressive form of this blood cancer with a short remission from standard therapies. The median overall survival rate is betwe...
We’ve just concluded one of the most historic years on record in terms of new therapy approvals for blood cancers. In all, the U.S. Food and Drug Administration (FDA) approved 18 therapies to treat patients with blood cancers, including some entirely new agents and some new uses for already approved drugs. Among these approvals were the first new therapies – four to be precise – for acute myeloid leukemia (AML) after a 40-year drought in treatment advances for this deadly blood c...
September is Blood Cancer Awareness Month and The Leukemia & Lymphoma Society (LLS) is increasing awareness about the urgency to find cures for blood cancers – the third most common cancer killer in the U.S. Throughout the month, our blog series will focus on the three main types of blood cancers: leukemia, lymphoma and myeloma. We spoke with Meredith Barnhart, LCSW, Director, The Leukemia & Lymphoma Society Information Resource Center who has extensive experience as a clinic...
By Margaret Martin, RD, MS, LDN, Licensed Dietitian and Nutritionist; Certified Diabetes Educator, PearlPoint Cancer Support As part of cancer treatment, you may make frequent trips to your cancer treatment center for appointments and treatment. If your treatment center isn’t close to home, this may mean extra transportation and lodging expenses. Many resources are available to cancer patients to help cover the costs of travel for treatment. The first step is to talk to your healt...
We are excited to announce a new feature in LLS Community for patients with Hodgkin lymphoma. To ensure that you have up-to-date information about treatment and care options, we will be providing you with summaries of the latest research findings from highly respected medical journals. To see these articles, please make sure you “follow” the Hodgkin Lymphoma group. If you already follow the Hodgkin Lymphoma group, there is no action needed. The articles are published in collaboration wit...
By Abby Henry, Oncology Content Manager, PearlPoint Cancer Support Medicare is an insurance program run by the United States government. Medicare is for people who 65 years or older Under 65 but have received Social Security Disability Insurance (SSDI) for 24 months Have end-stage renal disease or Amyotrophic Lateral Sclerosis (ALS) Medicare has 4 types of possible coverage. Part A (Hospital Insurance): Part A covers inpatient care such as hospital care, nursin...
By Margaret Martin, RD, MS, LDN, Licensed Dietitian and Nutritionist; Certified Diabetes Educator, PearlPoint Cancer Support Food safety is a valuable goal year-round but especially in the warmer months. Why? More people travel and transport food during the vacation months. The outside temperatures in summer and early autumn often leave outdoor food in the danger zone, between 40 degrees and 140 degrees. Food eaten at outdoor events like picnics, tailgates, and cookouts are at a higher...
Do you ever feel sad, withdrawn, or blue? Did these feelings appear or become more pronounced after your or your loved one’s diagnosis? If so, you are not alone. Many patients and caregivers report feeling down during the course of a cancer journey. These feelings can arise when adjusting to a new diagnosis or changes in relationships. They can also arise while adjusting to life after treatment or living as a “survivor”, even many years later. Identity challenges or emotions such as gui...
Caregiving can cause a roller coaster of emotions that change over time. Finding time and outlets to cope is not always easy. Dr. Robert Winn, medical director of Deer Valley and The Canyons in Park City, knows this struggle all too well. Life was near perfect for Dr. Winn and his beloved wife Nancy. When Nancy was diagnosed with acute myeloid leukemia (AML), their world went tumbling out of control. Dr. Winn could not speak of Nancy's illness without getting choked up or crying, so to commun...
