Lorraine’s PV Story: How I Got Better Care by Advocating for Myself


Can self-advocacy increase your odds for better health care? Meet Lorraine, mother of 12, who learned she had polycythemia vera (PV) after a routine checkup. She was referred to a local hematologist who downplayed her diagnosis and wanted to start her on iron infusions—Lorraine and her husband, Matt insisted on a second opinion from a specialist. She is now receiving world-class care from Dr. Srdan Verstovsek at MD Anderson Cancer Center, which is four hours from her home. Dr. Verstovsek works closely with her local doctors to help manage her care from afar. Lorraine is doing well and is making plans for herself and for her family’s future.

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