1. Collaborating for Cures: Spotlight on Blood Cancer Research

    Labs are eerily quiet. Clinical trials have been paused. Cancer researchers – particularly those who are early in their careers – are facing unprecedented uncertainty. The global COVID-19 pandemic has not only upended every aspect of cancer care for patients and their families, but also halted critical research around the world. In addition to lab closures, many institutions and organizations have been forced to scale back their investments in research, creating unexpected funding shortag...

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  2. Celebrating Survivorship: Katherine Albert

    Hello! My name is Katherine and I was diagnosed in January 2020 with Stage IV classical Hodgkin's Lymphoma. My diagnosis came after months of fatigue and diffuse body pain. Initially I was evaluated for lupus or RA, but those diagnoses didn't quite fit. After discussing with my PCP again and noting a persistent cough, a CT and PET-CT showed diffuse lymphadenopathy and lesions on my liver and spleen. Shortly after diagnosis I started treatment in a clinical trial with AVD+Opdivo. The r...

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  3. July 2020-Patient Education Programs

    Cancer Survivorship: Living Through & Beyond Blood Cancer A Virtual / Online Education Program July 15, 2020 (CTX) 6:00PM – 8:00PM (CT) https://bit.ly/2ZnBNdc Symptoms, Treatment, and the Role of Clinical Trials A Virtual / Online Education Program July 15, 2020 (Gateway) 11:00AM – 12:00PM (CT) https://na.eventscloud.com/556482 Clinical Updates for Blood Cancers A Virtual / Online Education Program July 25, 2020 (New England) 10:00AM – 12:00PM (ET) https://n...

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  4. Celebrating Survivorship: Julie Pasco

    March 22, 2020- 7 years since AML diagnosis, CURED!!! Today is a day to celebrate for me and my family!! As I approached today’s milestone, with all the craziness in the world (to include a 5.7 earthquake here in Utah), I am so blessed to be alive to celebrate my 7th year since diagnosis of Acute Myeloid Leukemia! Who celebrates being diagnosed with AML or any cancer for that matter? But let’s be honest, in the cancer lottery, AML, is not one of the preferred. At least if you cling t...

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  5. Celebrating Survivorship: Charmane Raye

    I was diagnosed last November with aggressive B-Cell Non-Hodgkins Lymphoma. I had two tumors. One on my heart muscle and one near my lung. I went through treatments at UVM Medical Center in Burlington, Vermont and just finished chemotherapy this month. I'm wearing a scarf in my picture because an oncologist named Hepa (not sure of the spelling!) from India who worked at the hospital visited me throughout the treatments and was an inspiration to me to keep going. She wasn't my official onco...

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  6. Celebrating Survivorship: Art Boudreault

    I was living in San Jose and had gone walking with a friend in a local park that followed the stream. It was December 15, 2006. Tom noticed that I had difficulty climbing up the five-foot stream embankment that the path went through. I myself didn’t recall this. Ten days later while visiting my wife’s children in Fairfax, the children and I went on a trail as we always did on Christmas morning. I found myself badly winded and returned to their home while they continued the hike. Then I no...

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  7. STAT HIGHLIGHTS LLS HELP FOR PATIENTS WITH CONCERNS ABOUT COVID-19

    The Leukemia & Lymphoma Society recognized the unique needs of blood cancer patients as the COVID-19 pandemic led to concerns about treatment, physician appointments, relaspe and more. On June 16, 2020, STAT published an article by Alissa Gentile, Director of the Clinical Trial Support Center and Meredith Barnhart, Director of the Information Resource Center at LLS. They discuss the number of patients reaching out to LLS to discuss concerns about their blood cancer and COVID-19 and t...

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  8. Celebrating Survivorship: Steve Krisfalusy

    I was diagnosed with Stage 4 Follicular Lymphoma on May 16, 2018, a date I will never forget. The cancer was already in my bone marrow and when I asked my doctor how long would I live if I did nothing, she said about 90 days. Dr. Amy is scary smart and I told her I needed to attend my sons wedding in a few months; let's see if you can get me there, even if it is in a basket. I started R-CHOP chemo treatments almost right away. The side effects, discomfort and pain were a 9 everyday. Shockingl...

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  9. LLS ANNOUNCES COLLABORATION WITH THE NATIONAL CANCER INSTITUTE AND CHILDREN’S ONCOLOGY GROUP ON A GLOBAL MASTER CLINICAL TRIAL FOR CHILDREN WITH ACUTE LEUKEMIA

    The Leukemia & Lymphoma Society (LLS) announced today a collaboration with the National Cancer Institute (NCI) and the Children’s Oncology Group (COG) to launch a global precision medicine clinical trial for children with acute leukemia. The three organizations share a commitment to address the urgent need for new, more precise and more effective treatments for children with cancer. The new study, called LLS PedAL (Pediatric Acute Leukemia), is a master clinical trial that will test ...

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  10. Celebrating Survivorship: Trisha Schreiber

    On November 15, 2019 at 29 years old, my world changed forever. I was diagnosed with Plasma Cell Leukemia. It is basically a hybrid of Multiple Myeloma and statistically only shows in men over 60. I wanted to be special but not like this! At my 6 week postpartum appointment with my second babe, my stomach had not been shrinking like it should but I assumed it was because it was my second baby or the diastasis recti. My OB did a ultrasound and saw a lot of ascites and that my liver was massive...

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