LLS Community is getting an update! In response to feedback, your support team is working on features to help you stay more engaged and improve functionality and access. Stay tuned for more information coming soon.
Policy & Advocacy: Raising Your Voice For Blood Cancer Patients A Virtual Education Program (GA-SC) December 2, 2020 12:00pm – 1:00pm (ET) https://www.lls.org/events/policy_and_advocacy What to Expect: Transition from Treatment to Survivorship A Virtual Education Program (Gulf Coast) December 2, 2020 5:30pm – 6:30pm (CT) https://www.lls.org/events/what-to-expect Coping with the Holidays: Strategies for Young Adults Living with Cancer A Virtual Educ...
My name is Florie and I am 64 years old and my family includes my husband, three adult kids and their spouses, grandchildren and three dogs. I was diagnosed on August 1, 2019 with AML after experiencing abdominal pain, infections and a fever. My treatment with 7+3 induction worked perfectly but in preparation for my transplant, I fractured my hip and needed a replacement. Several infections post surgery almost ended my life and I lost 75 pounds. My BMT did not happen. I then had a ...
New York, NY and Rye Brook, NY (November 2, 2020) - The Hairy Cell Leukemia Foundation (HCLF) and The Leukemia & Lymphoma Society (LLS) announced today they are teaming up to support a research grants program of up to $10 million over five years, to build a more comprehensive understanding of hairy cell leukemia (HCL), develop better therapies and optimize outcomes for patients with HCL. The two organizations share a commitment to find better treatments and ultimately a cure for patien...
Important findings of research conducted by the University of Florida's Drs. Carma Bylund and Carla Fisher in collaboration with LLS and The LLS Community were published this month in the journal Supportive Care in Cancer. The publication entitled, "Home Wasn't Really Home Anymore": Understanding Caregivers' Perspectives of the Impact of Blood Cancer Caregiving on the Family System is one of very few publications that documents the impact of blood cancer and caregiving on the entire family sy...
Surviving & Thriving with Childhood Blood Cancer A Virtual Education Program (Red River) November 5, 2020 6:30PM - 8:00PM (CT) https://www.lls.org/events/childhood-cancer-survivorship-program Taking Care of Your Mental Health and Wellbeing during COVID A Virtual Education Program (Metro NY) November 5, 2020 12:00PM – 1:30PM (ET) https://www.lls.org/events/takingcareofyourmentalhealthandwellbeingduringcovid Cancer Survivorship: Coping with the Holidays A Virtual Educat...
Our “Meet the Researcher” series on The LLS Blog shares what our outstanding LLS-funded researchers are working on, the incredible impact they’re making in the fight against blood cancer, and what inspires their efforts to find better treatments and cures. Dr. Maria “Ken” Figueroa, Associate Professor and Co-Leader of the Cancer Epigenetics Research Program at Sylvester Comprehensive Cancer Center, part of the University of Miami Health System, is focused on an exciting area of rese...
The whole world can change in 100 days. We learned that lesson painfully in early 2020. But what if something positive could happen just as quickly? This week, we’re sharing one of our most ambitious policy efforts yet. We call it "The 100 Days Agenda: A Patient-First Blueprint.” It’s our step-by-step guide for public officials that describes how all three branches of government can quickly begin to improve patients’ access to quality, affordable healthcare in the new yea...
We caught up with Gwen Nichols, MD, Chief Medical Officer at The Leukemia & Lymphoma Society (LLS), to share the progress we’re making to bring cures and better care to children with blood cancer through The LLS Children’s Initiative. Tell us about The LLS Children’s Initiative and why it’s so important to you and LLS. When I joined LLS in the spring of 2017, I knew my first order of business would be advancing our work for pediatric blood cancers. As a physician and re...
I was diagnosed with Acute Myeloid Leukemia (with a FLT3 mutation), at age 46, on April 24, 2018. I had no idea I was as sick as I was until I was in the ER in Tampa, Florida and told my body was 94% full of leukemia. I needed to start chemo immediately. The next day I had a port placed in and started chemotherapy the following day. When the final bone marrow biopsy results came back showing a FLT3 mutation, I was immediately moved to Moffitt Cancer Center and told I would have to undergo...
We close Blood Cancer Awareness Month with our weekly Celebrating Survivorship series highlight of LLS Community member, Joe. I went to my family doctor for a routine checkup back in November of 2019 and during the exam he found a large mass on my abdomen. It was 3 weeks later (2 days before Christmas) when I was officially diagnosed with Follicular non Hodgkin lymphoma. At first I struggled with the 'WHY' it happened, but as time went on, I came to realize the most important thing w...
